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Maybe it started with a seizure that came out of nowhere, or a leg that suddenly wouldn't hold you up, a hand that started shaking, or numbness that came and went. You went for tests, and the scans came back normal. You were relieved, and also confused. If nothing is damaged, why can't you walk, talk or move the way you used to? If this sounds familiar, you are not alone, you are not imagining it, and might have Functional Neurological Disorder, or FND. It is real, it is common, and it is treatable.
Functional Neurological Disorder is a problem with how the brain and nervous system work. Your brain, nerves and muscles are not damaged, but the way the brain sends and receives signals has become disrupted. A helpful comparison is a computer. A broken screen is a hardware problem. FND is more like a software glitch. In other words, the machine is intact, but the programs aren't running the way they should. The good news is that software can be updated.
FND is also far more common than most people realize. It is one of the most frequent reasons for which people see a neurologist, second only to headache. It affects people of all ages and backgrounds. FND also shows up differently in different people. Symptoms can come and go, change over time, or appear together. Common ones include:
Many people also live with fatigue, pain, poor sleep, or trouble concentrating, often described as "brain fog." These symptoms can affect work, relationships and your confidence in your own body. That impact is real, and it deserves care. So, is it all in your head? No! This is one of the most painful things people with FND hear, and it isn't true. Your symptoms are genuine. You are not faking them, and you are not choosing them.
FND is not diagnosed just because tests come back normal. A neurologist identifies it by finding specific positive signs during an examination. These are patterns in how symptoms behave that are typical of FND and different from other neurological conditions. For example, a weak leg may get stronger when your attention is drawn elsewhere. These signs are good news. They show your nervous system still has the ability to work normally, which is exactly why recovery is possible!
There is often no single cause. FND can follow a physical event such as an injury, illness, surgery or panic attack. It can also follow emotional stress, or appear with no clear trigger at all. Stress and past experiences can also play a role for some people, but FND can also happen to people with and without mental health history.
Recovery looks different for everyone, but many people improve, and some recover fully. Treatment works best with a team of clicnicans and usually has two parts.
1. Understanding your diagnosis. Research shows that people who understand and accept their diagnosis tend to improve faster. Learning how FND works takes away some of the fear and confusion, and gives you a map for recovery.
2. Retraining brain-body communication. Like learning any skill, the brain can relearn healthy patterns with practice. Depending on your symptoms, this may include:
It's important to know that progress often comes in small steps. Setbacks are also a normal part of the process, not a sign of failure. With the right support though, you can regain confidence in your body and get back to the life that matters to you.
Living with FND can be confusing, frustrating and overwhelming, especially after a long search for answers. But a diagnosis of FND is not a dead end. It is a starting point. Good treatment focuses on helping you understand how FND developed for you, while learning practical strategies to retrain brain-body communication, reduce symptoms, and restore your daily functioning. If you're ready to better understand your symptoms and start regaining control of your health and daily life, reach out today. In the meantime, I have included some free resources below that can be of help until you are ready to take the next step.
These free resources are widely recommended by FND specialists.
Learn about FND
Find support
For you and your care team
A self-help book